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High Risk Pregnancy Nonprofit Support

MomsCo: Supports high-risk pregnancy mothers with holistic programs designed for health, education, career empowerment, and community support​​.

The Colette Louise Tisdahl Foundation: Offers financial assistance to families experiencing high-risk pregnancy or pregnancy complications, NICU stays, or loss ranging from miscarriage to infant loss​​.

Parents Thrive Connections Program: Offers a virtual therapy group for women with high-risk pregnancies to cope with uncertainty, anxiety, depression, and concerns about connecting with their baby​​.

Allo Hope Foundation: Supports women with alloimmunization and families dealing with hemolytic disease of the fetus and newborn (HDFN), providing educational materials and promoting research​​.

Amniotic Fluid Embolism Foundation: Committed to supporting those affected by amniotic fluid embolism, compiling resources and helpful links for families and survivors​​.

Birth Injury Center: A free resource center for families affected by birth injuries and for those who want to learn about lowering their risk before childbirth​​.

 

Ending a Wanted Pregnancy: An online support group for people who have ended a pregnancy for medical reasons​​

Fetal Health Foundation: Dedicated to supporting expectant parents who’ve received a fetal syndrome diagnosis​​.

Hope for Two - The Pregnant with Cancer Network: Offers free support for women diagnosed with cancer while pregnant, connecting them with others who have experienced a similar diagnosis​​.

Tiny Hero: Supports families of children born with congenital diaphragmatic hernias (CDH)​​.

Maternal Alloimmunization Support: Provides advocacy and support to those affected by maternal alloimmunization and its comorbid condition, HDFN​​.

MoMMA’s Voices: A national coalition of patient organizations and individuals, advocating to reduce maternal complications in pregnancy and the postpartum period​​.

National Accreta Foundation: Aims to eliminate preventable maternal mortality and severe morbidity attributable to placenta accreta​​.

Preeclampsia Foundation: A patient advocacy organization providing education and support for those impacted by preeclampsia and other hypertensive disorders of pregnancy​​.

Save the Mommies: Advocates for the prevention of peripartum cardiomyopathy, a form of heart failure brought on by pregnancy​​.

The PPROM Foundation: Provides resources and support for those who have experienced Preterm Premature Rupture of Membranes (PPROM) in their pregnancy​​.

Hand to Hold: This organization offers support for NICU and bereaved parents throughout their journey, including parent support podcasts, online communities, counseling, and various educational resources​​.

 

NICU Helping Hands: Based in Fort Worth, this nonprofit offers support for families experiencing the challenges of having a baby in the NICU. They also run the 'Angel Gowns' program, providing support for siblings of NICU babies​​.

 

Lily's Hope Foundation: An all-volunteer nonprofit organization, Lily's Hope Foundation supports families with premature babies in the NICU. They focus on providing aid to these families in their time of need​​.

 

Project Sweet Peas: This national non-profit organization is run by volunteers who are passionate about supporting families of premature or sick infants and those affected by pregnancy and infant loss​​.

 

Hailey’s Hope Foundation: They provide comfort, empowerment, and support to families in the NICU. This includes financial assistance, care packages, and emotional and informational support to help families and their babies during their time in the NICU​​.

Preeclampsia Foundation:  Focuses on maternal health, especially related to conditions leading to prematurity.

Preemie Parent Alliance:  A network of organizations dedicated to supporting families of preemies.

Parent to Parent USA:  Connects parents of children with special health care needs, including preemies, for support and resources.

Ronald McDonald House Charities:  Connects parents of children with special health care needs, including preemies, for support and resources.

Graham’s Foundation: Dedicated to empowering parents of premature babies to help improve outcomes for their preemies and themselves. They offer care packages, connection with a preemie parent mentor, and an app to help navigate this uncertain time​​.

March of Dimes: One of the largest organizations in this field, they focus on the health of all moms and babies. They provide information, educational materials about all aspects of the NICU, and an online community for support, along with an app​​.

Michael’s Feat: Serving families in Monmouth and Ocean counties in New Jersey, this organization supports families whose twins are in the NICU​​.

Miracle Babies: Operating in the San Diego area, they offer shuttle rides to and from the NICU, care packages, financial assistance, education materials, and an app​​.

Hudson David McNeel Foundation:  Raises awareness and funds that support premature lives and assist families with navigating through the NICU Journey.  All funds are gifted to the University of Washington Medical Center's Neonatal Intensive Care Unit serving Washington, Wyoming, Alaska, Montana and Idaho. 

Dear NICU Mama:  free, community-based and trauma-informed support offerings give NICU Mamas the chance to heal at their own pace. Although peer-support is not a substitute for professional medical or mental healthcare, it’s a vital part of trauma-healing.

Tiny Miracles Foundation:  Focuses on providing support to parents of preemies in select regions. 

Peekaboo ICU:  Provides resources and support specifically for parents of preemies in the NICU

NICU Children's Books

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